Sunday, August 5, 2012

Third Day

Day Three in the city (Saturday) and I definitely was hitting a wall. Showering in the morning just seemed like an impossible chore. Getting dressed left me teary with the effort, especially dealing with the dreaded compression stockings. Paired with Birkenstocks that I poked extra holes in to accommodate my grotesquely swollen feet, I make quite the fashion statement.

Danielle is my champion at both breakfast and lunch, fussing over me, making a path for me, fetching me tea. Then, who sits at our table but Lynne, who I met yesterday and liked so much. More sympatico chatting. There is just nothing as wonderful as someone who agrees with everything you say.

Katie Couric is the guest during lunch and is heavily promoting her new show. She is clearly on top of the social media explosion and since I am not and I don’t understand half the references, I get pouty. Katie is soliciting topics for her show and I figure, what the heck, and I leave a comment encouraging her to do a show on the devastation that MS causes. I have to say, it was really moving to hear her talk about her husband’s death. She was 41, just two years older than I was when I was widowed, so I could really relate.

We toured the Expo after that and got lots of free goodies. At least I got some free goodies while Danielle got massive quantities of free goodies. I don’t know what she does different, but we walked the same areas and she ended up with this:

while I ended up with this:

We pause at an exclusive mattress display and one of the (absolutely freaking adorable) sales reps asks me a question about my chair. We start talking and he is so informative it is a good five minutes before I say, hey, how do you know so much about power wheelchairs?!? It turns out he used to sell them. I told him I didn’t like that the rented chair lurched forward every time I accelerated and that is how I hit the doorjam and broke the arm. He told me the chair needed to be adjusted down, that the kind of sensitivity I described was a setting. He said that definitely should be a consideration in telling them what happened. I feel like a kid going home to tell Mom and Dad I wrecked the car.

One final afternoon session and I am done in. I fall asleep sitting at my laptop and wake up just to order a hamburger for dinner. I won’t tell you how much it cost. I doze off again and wake up to put my pajamas on. Danielle has gone to dinner with friends and they all come back to our room before going to the last round of BlogHer’12 parties, which are not my cup of tea. But these girls are all sweet and cute and young, so it is good they are going to have a good time.

Coming up I will talk about experiencing the conference from the perspective of a wheelchair.



  1. I'll be interested in hearing how you coped with the w/c. Were you only one there who was using one? Sorry your feet are still swollen -- I thought the compression would help. I'm too hot this summer to use the stockings; I'll wait until it's cooler. I so want to wear all my shoes again!
    Looking forward to the next report!

  2. Ah, and what a saga it is Muff!! lol I definitely wasn't the only one, there were several, I should mention that in my post.

    Oh Muffy, my legs are so swollen, that makes it harder to walk than the MS. It hurts so much!! I wear the stockings and I wrap my feet but nothing helps. It is really alarming. I am going to have to do something, it is so bad I am even considering going back to getting them wrapped again for the six weeks, even though that was a nightmare. It is so hard not to be bitter. Wasn't the MS enough?!?! I had to develop this too?!?! And not one of my health care providers ever, ever warned me this could happen from immobility. I didn't even learn it in nursing school. But I have since read it is a common side effect. Preventative care should be a priority, especially since it is irreversible. I swear, no one cares, you really have to look out for yourself.

    1. Marie,
      I have a friend who adopted a son who's biological parents have MS (his bio mother is my friend's SIL actually). Such an amazing story. I have met this young boy's parents and they are really the greatest. Sadly his biological father passed away earlier this year. So sad.

      Anyways, I'm glad you had a chance to meet so many helpful people this weekend and branch out a little from your comfort zone. It's nice to know there are still people out there who will go out of their way to help a stranger. I do hope you begin to feel better and find a way to get some relief.

  3. This comment has been removed by a blog administrator.

  4. I welcome comments, I love comments, but only ones that are civil and respectful. I am sorry, but I will delete any that are mean spirited and cruel.

  5. Hello! Even though I don't know you, I want to say I am proud of you for going outside of your comfort zone and attending the conference. I have a friend with Friedrichs Ataxia and another friend with Muscular Dystrophy and I know how hard it is for them to travel and stay in hotels and deal with less than par accommodations. I hope you had an amazing time despite the condition of your room and the people who were much too busy with their own agendas to pay you a little bit of respect. I hope you recover quickly from your stay in NYC!

  6. I wasn't intending to he cruel. I just think you sound like an awfully nice person and I would hate to see you used. Have a wonderful day :)

  7. See no dodge, ghost Cheap Asics Womens Running Shoes first heart calmed down, the body of Asics Trainers Sale spiritual power consuming Cheap Asics Gel Lyte 3 Sale speed, that bloody long knife cut pledge toward light big place.

    This is Cheap Asics Running Shoes going to do. Cheap Asics Gel Cumulus Sale He wanted to commit suicide. How Cheap Asics Trainers Sale Asics Running Shoes On Sale not to dodge. Discount Onitsuka Tiger Mexico 66 If Cheap Asics Trainers Shoes not dodge it should hold up protective mask ah. Know that they have been Discount Asics Running Shoes Sale unable to re-estimate fight, ready to commit suicide it.

    Stands above the crowd for the practice of all issued amazing voice.The next moment, the crowd that Asics Running Shoes Sale Cheap Women Asics Gel-noosa TRI 8 look great again marvel of expression, and instant freezing in there.

  8. Some foods can cause an episode of acid reflux when we eat them. Fried foods, caffeinated beverages, alcohol, and even chocolate are common triggers for acid reflux. Certain acidic foods are really bad for you as far as acid reflux is concerned. | | | | |

  9. Hocha la tête vers le coin d'une promenade squelette, accroupissez-vous, retirez la dague du fourreau, et depuis l'effondrement moncler soldes de l'os sur le dessus d'une couche de grattage doudoune moncler pas cher vert .un autre nom opportunité maîtres feijian tout au long de la tête, doudoune moncler pas cher en train de doudoune moncler pas cher mourir d'une grève Zhanla maîtriser ses bras un arm.After étant Zhanla qui ont été pillées beaucoup doudoune moncler pas cher moncler pas cher qui pénètrent la tête a été maîtres feijian, dans leur pratique à huis clos au moment doudoune moncler pas cher critique, pour être ennemis viennent à tuer, il ya deux ennemis, y compris une personne sous l'attaque par le maître battu Zhensi, d'ennemis ils fui. Vu à la poly-Ling à l'intérieur, et enfin rattraper concludes.And doudoune moncler pas cher je pense la même chose.

  10. This is a smart blog. I mean it. You have so much knowledge about this issue, and so much passion |

  11. It was wondering if I could use this write-up on my other website, I will link it back to your website though.Great Thanks. |